As good as it gets

It’s December 1972. I am three years old. My parents have to be away for the night. They drive me to stay with Dad’s brother and his family. It’s cold and it’s raining. We stand on a covered porch and knock. A big lady with a big smile opens the door to greet us.

“This is your Aunt Janice,” Mom tells me. “And this is your cousin Nicky.”

You are standing behind your mother. You are eight years old. This is the first time we meet. You’re not interested in a little kid like me, and I’m too timid to pay much attention to you.

Mom and Dad leave. Your mother reads to me: The Little Engine that Could, Curious George, Doctor Seuss. You sit nearby and listen. Before bed, I learn that you wear plastic pants like I do. You’re a big boy but you still wet the bed.

It’s a Sunday in autumn 1978. You are fourteen; I am nine. My family is visiting yours after church. You are curled up in a chair watching football on a black-and-white television. You have a magazine in your lap. I am watching you watching football. We don’t have a TV, and I don’t know anything about football.

“What are you doing?” I ask.

“I’m watching the Pittsburgh Steelers,” you say. “They’re my favorite team.” You show me the magazine — an entire magazine only about football. It lists the teams and the players and the schedules for the entire season. You show me how you take notes in the magazine, writing down the scores of each game, writing notes about your favorite players.

I tell you that I like comic books. When the game is over, you take me upstairs to show me your comics. You don’t have many, and none of them are about superheroes, but when you offer me a Richie Rich, I take it home with me.

This is our first real interaction not as cousins, but as friends.

We see each other often at family gatherings during our childhoods. We are friendly, but the five years between us is a very real barrier at this point. Soon, that barrier will fall.

Nick's senior picture

It’s sometime during 1983. I’m riding in the car with Dad. He hands me the newspaper and tells me to turn to a specific page. It’s an article about you. You are nineteen. You have been convicted of a crime, a crime that I don’t understand. Dad explains it. You’ve hurt somebody very badly.

We don’t see you at family gatherings for a couple of years.

It’s summer 1986. You’re living down the road at grandpa’s house. Since grandma died, he’s been struggling and it’s helpful to have somebody living with him. You have the entire upstairs to yourself. At first, I’m nervous about visiting you. You are a criminal. I cannot let that go from my mind. Eventually, however, I let my guard down. I allow myself to move on.

You’ve begun working for Dad as the box factory’s first employee. When I help in the shop after school, you and I chat. We talk about music. We talk about books. (After you read Zen and the Art of Motorcycle Maintenance, we talk a lot about Quality.) We talk about movies, especially your favorites like Being There and After Hours.

Now and then, I walk down the road to visit you. We sit upstairs and you play your records for me. You play Yes and Deep Purple and Queen. (You play me a lot of Queen.) You play Styx for me: The Grand Illusion. To you, it’s an okay album. To me, it’s a revelation. It becomes part of the soundtrack to my life.

It’s September 1991. I’ve graduated from college without a plan. I take a job selling insurance door to door. The job requires I live near Portland, so I move in with you. You’re renting a duplex in Canby.

Your home is a mess. It’s chaos. It’s a disaster area. There are dishes piled high in the sink. There are clothes piled high on the floor. There’s Stuff everywhere. But you have a spare bedroom for me, so I live there.

You work at the box factory. I sell insurance. In the evening, we chat and play games while watching MTV. Nirvana’s “Smells Like Teen Spirit” is in heavy rotation. We don’t know what to think of it.

I buy a Super Nintendo. I buy a Game Boy. I buy a Geo Storm. “You’re spending a lot of money,” you tell me. “It’s money you don’t have yet.” You warn me about going into debt, but I don’t listen.

It’s spring 1993. You’ve been watching me struggle with money. You lend me a copy of The Only Investment Guide You’ll Ever Need by Andrew Tobias. You show me how to use Quicken to track my money. You teach me about mutual funds.

I begin investing $150 each month in Invesco mutual funds. You are pleased. So am I. But this adventure ends when I decide that I’d rather have a new computer. I cash out my shares to buy a new Macintosh. You are disappointed in me.

It’s autumn 1994. You’ve purchased a house in Molalla. But because you’re a cheap bastard, it’s a cheap house. It’s 80 years old. Maybe more. It’s in rough condition. You don’t care. It’s yours.

On Sunday mornings, I drive out to watch football with you. I buy donuts and chocolate milk, which we consume in great quantities. We watch the Pittsburgh Steelers. In the afternoons, we watch the Seattle Seahawks. Some days we play computer games instead. We play Warlords and Warlords II. We play Darklands. We play Civilization.

We have become close friends.

We attend concerts together. We eat dinner together. We talk about music and movies and games and books. You are one of the only people in my life who is willing to engage in deep, philosophical conversations and I appreciate that.

It’s July 1995. Dad is dying. The cancer is dragging him under. He’s decided to leave 60% of the box factory to Mom, 10% to me, 10% to Jeff, and 10% to Tony. He’s also leaving 10% to you, his nephew. More importantly, he’s leaving you in charge of the business.

Since your father died five years ago, my father has stepped into that role for you. He truly sees you as a son.

Nick with a new part for the box factory

During the final weeks of Dad’s life, you begin leading the business. You’re also active in helping him put his personal affairs in order. The day he dies, you’re the one who is responsible for getting his will notarized. You personally dig Dad’s grave at the church cemetery. It’s a monumental task but you see it as a debt you owe him.

(Twenty-seven years later, I deliberately seek to pay you the same respect. During the last two months of your life, I’m with you as much as possible. “I want to be your hands and feet,” I tell you, and I mean it.)

It’s summer 1996. You have embraced your homosexuality. You are living the Gay Life. You are partying and dating and going to the gym. You introduce me to some of your friends: Tom, David, Shad, Hector.

You sell your house and rent an apartment in Portland. You begin to travel. You’re interested in European history, so you tour Greece and Italy with Hector. You make another trip to see Italy with your friend Kathy. You tell me that I ought to travel too. I’m not interested in travel.

You’ve been a life-long stamp collector, but now your focus turns to ancient coins. Ancient coins give you a chance to combine two passions: collecting and history.

It’s summer 1999. One afternoon I come back from making sales calls and have a bunch of trading cards in my hand. “What are those?” you ask.

“They’re Magic cards,” I say. I explain that Magic: The Gathering is a game played with collectible cards. Each card bends the rules in some tiny way. Your aim is to use your pool of cards to build a deck that can defeat the deck your opponent builds. “I guess it’s a little like the card game War,” I say.

I teach you to play. Within a few months, you know more about the game than I do. Much more. You become obsessed with it. You buy boxes of cards. You play in tournaments. You’re not especially good, but you enjoy it. And you have moments of brilliance. In fact, at one tournament you actually defeat the number one player in the world. Mostly, though, your play is fair to middling.

During the next 20+ years, you build a vast collection of Magic cards. You have thousands of cards. Tens of thousands of cards. Hundreds of thousands of cards.

You also dive deep into ancient coins. You order bags of “uncleaned coins” from internet dealers, then meticulously soak and scrub them. When they’re clean, you get the joy of trying to determine which coins you’ve acquired. You buy books on coins. You read about coins. You try to share your passion with your family and friends, but nobody else is interested.

It’s July 2007. I’ve just returned from my first trip to Europe: two weeks in the U.K. with my wife and her family. I’m back at the box factory but struggling. I don’t want to be there. I want to be anywhere but the box factory.

You are angry. You are bawling me out. “You never should have gone on that trip,” you spit. “Your absence made it abundantly clear just how little work you do around here.”

You’re not wrong. For a while, I’ve done almost nothing at the box factory. My attention has been focused on this blog, on Get Rich Slowly. In fact, I’m now earning as much from the blog as I am from the box factory.

“You’re right,” I say. “So why don’t I quit?” It takes a few months for me to get the guts, but I do it. I leave the box factory to become a full-time writer.

It’s November 2008. You and I spend an afternoon cleaning the moss from Mom’s roof. While doing so, we have another one of our deep conversations. This one is about money. It’s about wants and needs. I turn this conversation into a blog post, and the ideas we discuss become a key part of my financial philosophy.

It’s September 2012. You and I take a three-week tour of Turkey. We make it up as we go along. It’s the first time we’ve traveled together, and we’re pleased to discover that we’re perfect travel companions. There’s an easy flow to our journeys.

We enjoy strolling through Istanbul together, we enjoy taking the bus to Pamukkale, we enjoy the early morning hot-air balloon ride over Cappadocia. But we’re also willing to give each other space. I spend one day at the hostel, writing and drinking beer. You spend a day exploring small villages in central Turkey. It’s a grand adventure that we both enjoy.

Nick endures a pitch from the Turkish carpet salesman

When we return from Turkey, we agree that we should travel together in Europe on a regular basis. But life gets in the way.

It’s Spring 2017. It’s been five years since our trip to Turkey. We’re ready travel together once more. After a year of talking and planning, you and I and Kim have plotted a month-long driving tour of Spain. Mostly, we’re going to make it up as we go along — just as we did before. We spend a Saturday evening finalizing details over a bottle of red wine. “I’ll start booking places next week,” I say.

But on Monday, you phone me. “J.D, don’t start booking yet,” you say. “This is the thing. I have cancer. I’ve been getting some tests and the results just came back. I have esophageal cancer, and I need to start treatment immediately. I can’t do the trip.”

My heart sinks — not for me, but for you. It’s the family curse. Grandma died of cancer. Your father died of cancer. My father died of cancer. Your brother died of cancer. All of us Roth males live in fear. We’re waiting for the day we learn that the curse has struck. And now it has struck you.

It’s Summer 2018. The doctors have been treating your cancer with immunotherapy. You and I grab the dog on a Wednesday morning and drive to the Oregon coast. You tell me all about your cancer, its survivability (bleak!), and the things you still want to do.

“I want to travel, J.D.,” you say. “You and I still have time to see the world.”

Your prognosis waxes and wanes. Some days it seems like you’ll live for years. Others, it seems like you have only weeks. Still, we manage to plan and execute a family trip to Europe in December. Your brother and three members of his family join us to explore Christmas markets in Austria, Hungary, Czech Republic, Switzerland, Germany, and France.

After your brother’s family returns home, you and I travel together for a week. Against your protests, I pay for us to ride the Glacier Express across the Swiss Alps. It’s too expensive for your frugal nature. But you love it. You are in awe. “J.D.,” you tell me later, “I’m so glad you made me do that. It was one of the highlights of my life.”

All aboard the Glacier Express!

Birthday card for Nick's 55th

It’s May 2019. You and I are in the middle of a two-week tour of northwestern France. We’re making it up as we go along, as we like to do.

We spend a night on the island of Mont-Saint-Michel. You love it. We spend a night at Fontevraud Abbey, where we eat in the Michelin-star restaurant. You do not love the meal. The food is fancy but you are unimpressed. It’s too expensive. You cannot believe that I would spend money on this.

As we drive across France, our discussions are deep and weighty. You are weak and tired. Your mortality is heavy on your mind. Like me, you are filled with self-loathing — the crime you committed in your youth is always on your mind — so we talk at length about what makes a person good and what makes a person bad. Does one mistake define a life? How can you forgive yourself for the wrongs you’ve done to others? Neither of us has any solutions, but it helps to talk about these things with someone you trust.

It’s COVID times. You make yourself scarce. You are immunocompromised, so you’re unwilling to take risks. You are angry at your brother and his family because they don’t take COVID seriously. You vent your frustrations to me. You love Bob but this is causing a real rift in your relationship.

You continue your treatments — chemotherapy and others. Often, these treatments leave you drained and exhausted. You cannot even bring yourself to play Everquest. (You’ve been playing Everquest for nearly twenty years. You have a regular group that you play with. The game is a big part of your life.)

“Make some videos for me,” you say. You tell me this again and again. So, I make some videos for you.

I record myself playing Hearthstone. I record myself playing World of Warcraft. I record myself playing Civilization. When you don’t have the strength and focus to play games yourself, you watch me playing my games. I have no idea why you find this appealing, but you do. So, I continue to record videos for you.

It’s December 2021. You’ve grown much weaker. You are tired all of the time. It’s a struggle for you to walk. Still, you’re doing your best to live life as normal.

“I want to visit you and Kim in Corvallis,” you say. You drive down one Saturday and bring with you boxes of craft supplies. We spend hours building Christmas ornaments and decorations. In the evening, you introduce us to “The Great British Baking Show”.

The next Saturday, I drive up to Portland. You and I spend the day baking Christmas cookies. You’re weaker even than seven days ago, so you sit at the table and mix ingredients. I do all of the moving around.

baking Christmas cookies with Nick

“I think I’m going to leave my coins and cards to you,” you say. I’m uncomfortable with the conversation.

“Whatever you’d like,” I say. Over the years, you and I have continued to play Magic: The Gathering. You frequently play online. I play only when you and I attend “pre-release” tournaments. Maybe once each year, we’ll spend a Friday night with other nerds, playing Magic in local game stores. You remain a better player than me, but my skills are improving. I rarely lose anymore, but I don’t win much either. I earn a lot of draws.

It’s 11 February 2022. We’re packing your apartment. You’ve decided to move to Canby so that you can be closer to your brother and closer to the box factory. You and I are sifting through 21 years of Stuff. We’re creating a pile to donate. We’re stuffing boxes with clothes and mementos. Mostly, we’re packing your collections.

You have boxes and boxes of Magic cards. You have boxes and boxes of ancient coins. You have travel souvenirs. You have old computer games and manuals. You have children’s books. You have crafting supplies. You have far too much food for a single guy — and most of that food is long expired.

As we pack, we reminisce. We talk about the things we’ve done together. We talk about the things we want to do — the things we wanted to do. You show me your new fish. You’ve always loved aquariums. During the 1990s, you and I both set up aquariums at the same time, but we lost interest after a few months. Now, at the end of your life, you’ve decided you want to keep fish again. You enjoy telling me all about them.

It’s 26 February 2022. I’ve returned to help you pack. It’s slow going because you have no stamina. You find it difficult to make decisions. You are having trouble breathing. “Hector says I should go to the E.R. when I have trouble breathing,” you say, “but that seems excessive.”

After two hours, though, you’ve changed your mind. You ask me to drive you to the hospital, so I do. The pneumonia you had in January has returned. And the doctors tell you that the reason you’re having so much trouble breathing is that your left lung has collapsed.

It’s 04 March 2022. I’m at your apartment to help you finish packing. You are scheduled to move the next morning. The phone rings. It’s one of your doctors. You put him on speaker so that I can listen. You are seated on the sofa, your head bowed. As the doctor talks, you rock back and forth. Back and forth. Back and forth.

The doctor tells you that a feeding tube is not an option. “I’m sorry,” he says. “We can’t take the risk. The procedure is likely to kill you.” The doctor is audibly uncomfortable, yet he spends twenty minutes talking you through what comes next.

“I know this hurts to hear,” he says, “but you only have a few months left. Maybe a few weeks. It’s hard to say.” In reality, your life will end in 53 days.

“At this point,” the doctor says, “you should make your life about you. You should eat what you want to eat. You should drink what you want to drink. You should go where you want to go. You should see the people you want to see.”

You rock back and forth. Back and forth. Back and forth. “Thank you,” you say. “I understand.” After the call has finished, you sit in silence for a few minutes. I watch from the kitchen.

“Well,” you say. “I guess we should finish packing.” So we do.

I spend the night at your apartment. This is the first of 29 nights I will spend with you during the final 53 days of your life. From here on out, either your brother or I — often both of us — will be with you nearly all of the time.

It’s 07 March 2022. Yesterday was your 58th birthday. Today, we are unpacking at your new apartment. In a strange twist of fate, it’s the other half of the duplex you and I rented together in 1991.

You’ve set up three aquariums in the apartment, including one devoted only to Mbuna cichlids from Lake Malawi. That tank is currently home to six 34-cent goldfish, but you and I will gradually purchase nineteen cichlids over the next few weeks.

Your brother and his wife come over to help us unpack the kitchen. You sit in your walker and sort the boxes. You hand food to us. Audrey handles the food you’re keeping, tucking it into cupboards. Bob boxes some food to take home. I box the rest for me and Kim.

After Bob and Audrey leave, you begin experiencing severe chest pains. I drive you to the emergency room. You and I spend the night in the E.R. while doctors perform a variety of tests. I show you the videos I’ve made of our trips to Turkey and France.

These videos take your mind off your situation. I promise that I’ll finish the video of our family trip to European Christmas markets, but I never get the chance to do so. You’re discharged at five and we head home.

It’s 13 March 2022. You and I drive around Portland to look at fish. Your aim is to have 25 cichlids in your 90-gallon tank, but we start with six.

In the afternoon, Bob and Hector come over. The three of us have planned an important conversation with you, and you can smell it from a mile away. “You’re taking away my keys, aren’t you?” you say. Yes, we are taking away your keys. Driving has become dangerous for you. But that’s not all.

Hector asks if you’ve considered hospice. You become defensive. You don’t want to do hospice because you’re afraid that means surrendering to the disease. You don’t want to surrender. You want to fight. You want to continue driving to the E.R. whenever you have a problem.

Bob and Hector and I know this isn’t a workable solution. We try to talk some sense into you. You are resistant. You and Hector bicker like an old married couple. In the end, though, you agree to meet with hospice to learn more about it. By the time I see you next, you have enrolled in a hospice program. It makes everything so much easier.

Over the next six weeks, we all come to appreciate the hospice nurses and volunteers. They’re amazing.

Also over the next six weeks, you have us watch hundreds of hours of the Aquarium Co-Op channel on YouTube. The channel plays almost constantly on the living room TV. Eventually, you have me drive you to purchase a new $300 TV so that you can hear and see the Aquarium Co-Op videos better.

At first, I’m annoyed by the constant fish videos. In time, however, I grow to love them. They’re comforting. And the host (Cory) is precisely the kind of YouTube personality I’d like to be — only he talks about fish and I’d like to talk about health and wealth. Bob and Hector and I may be the folks providing the bulk of your in-person care, but you demand Cory as a constant presence too.

It’s 17 March 2022. We’re driving to Portland so that you can visit your friend Kathy — and so that you can buy more fish. We’re talking about all of the loose ends in your life. I ask why it took you so long to complete your will. I ask why you haven’t designated beneficiaries on your investment accounts. I ask why you haven’t made a list of your logins and passwords.

“I’m in denial, J.D.” you say. I tell you that I get it.

The conversation turns to your new apartment and all of the boxes left to unpack. “It would really help if you took some of this stuff down to Corvallis,” you tell me. “I keep saying it’s okay to take some of the boxes of coins and Magic cards now before I die,” you say. “Why don’t you do it?”

I shrug. “I don’t know,” I say. “I guess I’m in denial too.”

You grab my right arm, causing me to veer slightly as I steer. “Thank you, J.D.,” you say. “Thank you. I get it too.”

It’s 22 March 2022. I’ve been away for three days taking care of Real Life in Corvallis. I’ve just returned to Canby. You are surly and sour. You are in pain. You are uncomfortable. You are finding it difficult to breathe. You are taking your frustrations out on everyone around you, even those that you love. Especially those that you love.

I can see that Bob is frustrated. “How do you feel about buying some new fish?” I suggest.

“I feel great about buying some new fish,” you say. I drive you around Portland for four hours. You’re too weak to exit the car, so I go into the pet stores and film their selection of cichlids. Then I return to the car so that you can see what each store has in stock. Eventually, we buy two fish.

We’re near Uwajimaya, the Asian grocery store, and you decide you want to try to go in. We get you out of the car, change oxygen canisters, then find a shopping cart for you to lean on. It takes fifteen minutes to walk from the snack aisle to the deli section. The journey exhausts you.

It’s precisely midnight between 23 March and 24 March 2022. You call from the other room: “Hello? Help!” I spring from the couch. Bob leaps from his recliner. We’re by your side in seconds.

“I can’t breathe,” you whisper. Your voice is plaintive, desperate. Bob wraps his arms around you and lifts you to a seated position. I pull the Pittsburgh Steelers blanket off you and then turn the oxygen dial to five, the highest it can go. You sit on the edge of the bed, gasping.

“I can’t breathe,” you say. Bob whispers to you, stroking your bony back. I go to the kitchen to see what drugs we have at our disposal. We gave you an ativan when you went to bed at ten. You’re supposed to go a minimum of four hours between doses but I don’t care. I get another one for you. I draw some morphine.

Nick's medication counter

“I can’t breathe,” you say as you take the drugs. Bob calls the hospice nurse. It’s Tori, which gives me a sense of relief. Tori is awesome. She asks for your symptoms. She asks what drugs you’ve had during the past 24 hours.

“He’s on his fentanyl patch, of course,” I say. “He’s had two ativan in the past two hours. He’s had eight doses of morphine in the past day, but he hasn’t had any since six in the evening. He refused a dose at eight and again at ten.”

You don’t want to take the morphine. It makes you tired. It makes you muddle-headed. It makes you feel like you’re losing. In the afternoon, you blew up at a different hospice nurse. “I thought you guys were supposed to make me comfortable,” you barked. “Well, I’m not fucking comfortable.” When she suggested you take more morphine, you protested. “I watched when we gave my brother more morphine and he slipped away. The same thing happened with J.D.’s dad.”

“I can’t breathe,” you say, and Tori promises to call the doctor in charge of your case. The wait is agonizing. You can’t breathe. You can’t breathe. You can’t breathe. Tori calls back a few minutes later and tells us to increase the morphine.

“Give him another dose now,” she says. “In an hour, give him a double dose. Going forward, that’s the new dosage.”

Soon, you can breathe. The ativan relieves your anxiety. The morphine relaxes you. Bob lays you back on the bed and covers you with your Pittsburgh Steelers blanket. He and I sit in your bedroom, silent. We watch as you breathe. When you fall asleep, he returns to the recliner and I return to the sofa. We struggle to fall back asleep.

It’s 27 March 2022. You’re feeling stronger. Not strong, but stronger. You tell me that you’d like to go to the Coast, so we do.

You had harbored a hope of seeing Europe once more before you died. COVID dashed those hopes. You moderated your dreams, telling me that instead you’d like to make it to Atlanta to visit the Georgia Aquarium. That’s another dream that will never come true.

You decided that you’d be content if you could simply see the Oregon Coast Aquarium in Newport. Even that dream looked impossible for a few days. Now there’s a window of opportunity, so we seize it.

On the drive, we talk about music. I explain at length why I am such a fan of Taylor Swift and her music. “I hear what you’re saying,” you say, “but I just can’t get into her.” You’re a creature of habit. You like what you’ve always liked, and that mostly means classic rock.

As we drive, we take turns asking Siri to play songs on the car stereo. We steer clear of Taylor Swift and focus on the music you like. We listen to:

  • Kansas – Dust in the Wind
  • Mountain – Nantucket Sleighride
  • Grand Funk Railroad – I’m Your Captain (Closer to Home)
  • Neil Young – Old Man
  • Trio – After the Gold Rush
  • The Decemberists – Crane Wife
  • Pearl Jam – Just Breathe
  • James – Sound
  • CSN – Southern Cross
  • Jefferson Airplane – White Rabbit
  • Deep Purple – Hush

When we reach the aquarium, you’re too exhausted to go in. I park in the sun so that you can be warm. You sleep in the car for an hour while I sit outside watching the Portland Timbers game on my phone. When you wake, you feel better. We get you in the wheelchair for the first time, and I push you around for 90 minutes so that we can look at the fishes.

Nick at the Oregon Coast Aquarium

Afterward, you ask me to stop at the candy store. We spend $100 filling bags with salt-water taffy, almond roca, and chocolate-covered twinkies. I think it’s been a long day and that we should head home. You don’t want to go home. You want to see more of the coast.

I drive slowly along the shoreline. I drive through the touristy parts of town. I drive along the shoreline again. You’re not hungry, but you want to get fish and chips. We stop to look up the best fish and chips spot that’s open at 6 p.m. on a Sunday night. It’s located in a strip mall 45 minutes north.

The manager is friendly and accommodating. When you tell him you’re cold, he brings you a hot chocolate. You drink your cocoa with a bowl of clam chowder. I have one beer with some fish and chips. I give you one piece of fish. You think the food is delicious. As I’m wheeling you out the door, you make me stop and call over the manager. You tell him it’s the best fish and chips you’ve ever had.

On the drive home, you sleep. When we reach the apartment, you’re too weak to climb into bed on your own. I have to lift you. As I turn out the light, you whisper, “Thank you, J.D. Thank you for everything.” I sit on the couch and cry.

It’s early morning 29 March 2022. The past 24 hours have been rough. You cannot walk without assistance. Your cannot find the words you want. You cannot get enough air. You go to sleep early.

Then, for no apparent reason, you wake at 2:30 and you are almost completely your old self again. You walk to the kitchen and rummage through the fridge. You pour a glass of chocolate milk. You ask to watch a movie.

I choose Arrival. “It’s a beautiful film,” I tell you, forgetting that the beginning also features a death like the one you’re experiencing. As we watch, I try to explain some things because I know this is the only time you’ll ever see the film. (And, in fact, it may be the last film you ever watch.)

“This story is about memory,” I tell you. “And time. And how the two are interwoven. It’s sort of non-linear at times.” When the aliens appear and begin communicating with their circular “sentences”, I tell you this is the central metaphor of the film.

You are awake and engaged for the entire movie. You find it fascinating. You ask questions. I give you answers. When the movie is over, you want a bowl of ice cream. You get up unassisted, pull the vanilla ice cream from the freezer, then add some strawberry syrup to several scoops of the stuff. You wolf it down.

“What should we watch next?” you ask.

“Dude,” I groan. “I need some sleep. I need to drive home in a couple of hours.” So, we go back to sleep. But as I drift off, I’m filled with regret. What am I doing? Why am I sacrificing this precious time with you? Sure, I’m tired, but so what? All your life, you’ve said, “You can sleep when you’re dead.” Well, you soon will be dead — I can sleep then.

I look over to see if you’re awake, but you’re not. You’ve nodded off in your recliner. I’ll simply have to savor the three hours I just got to spend with the normal you. (This moment and this film also inspire me to start documenting these moments with you, and those moments become this blog post.)

It’s 31 March 2022. After 48 hours in Corvallis to rest and recuperate, I drive back to your apartment to relieve your brother. I’m hopeful that you’ll be just as awake and alert as you were two days ago. You’re not. In fact, things are grim.

You barely respond when I greet you. When I ask you questions, you gaze at me vacantly. When you do respond, it’s a guttural whisper or nonsensical steam of consciousness.

“What about the cigarette butt?” you ask as I clean the coffee table.

“What?” I say, looking around. “What cigarette butt?” Nobody in your life smokes.

“What about the cigarette butt?” you say, pointing to the coffee table. “The white one. What about it?”

Nothing you say over the next hour makes any sense. “Look at her eyes. She looks like a bug. Is the new girl in my medicine? The fish, the fish, the fish.” You have trouble completing thoughts. But even when you complete your thoughts, what you say is a sort of word salad. Sometimes I can puzzle out what you mean to say. Mostly, I can’t.

You become restless. You remove your oxygen tube and attempt to stand. I give you support. I walk you to the kitchen. You open the refrigerator. “Hold on,” I say. “I’ll get you a chair to sit in.” I let go of you for only a moment — for only enough time as it takes to lean over and grab a chair from the table — but in that moment, you collapse to the ground. I manage to slide partway under you in an attempt to break your fall.

“Wow,” you say. Yes, wow. Fortunately, neither of us is hurt. It takes several minutes, but you manage to crawl to your hands and knees, and from there I’m able to lift you to standing. This time, I don’t let go. We get you into the chair. You eat some seafood salad and some smoked salmon, then I help you stumble back to your recliner.

“I’m not qualified to do this,” I text Kim. “I don’t know what I’m doing.”

You wake in the middle of the night to make lists. You make lists of things to do. You make lists of things to give away. You make lists of people to call. Because you’re a cheap bastard, you write your lists on the back of old envelopes or grocery bags.

You pick up a pillow from the floor and hold it to your ear. Then you hold it to your other ear.

“What are you doing?” I ask.

“Why is this so loud?” you ask. “Is it a bomb?”

It’s 03 April 2022. Nurse Diane shows you how to use adult diapers (or “briefs”, as she calls them). I expect you to be defeated by this. You aren’t. You’re surprisingly pragmatic about their use.

It’s 08 April 2022. I arrive back at your apartment after several days in Corvallis. You’re in much better shape than when I left you. You’re cheerful. You’re lucid. You’re engaged.

You ask to the go the tulip fields, so I pack your wheelchair and meds and oxygen tank, then we load into the car. There’s a large crowd at the flower farm despite being a cool Friday afternoon. Although you grew up maybe two miles from the tulip fields, you’ve never been here before.

I push you around from row to row. You admire the color. You point out your favorites. I point out mine. In the catalog, you note the bulbs I should plant for next spring. We suffer through a chilly rain shower, caught unprepared in the open. Then we admire the rainbow that follows. We can see both ends, but no pots of gold.

Nick at tulip fields

You’re hungry, so we drive to El Chilito, your favorite taco stand. It takes you twenty minutes to decide what to order: tacos dorados. When we take them home, you manage to eat one taco, but the rest of the tacos (and all of the chips) go to waste over the next several days. You have no appetite.

It’s 09 April 2022. After the hospice nurse visits, I tell you I’m going to go grab groceries real quick. Despite not having an appetite, you still dream of food. You are constantly having me add things to the shopping list: seafood salad, Greek yogurt, shrimp, apple juice, pretzels, black grapes (crisp, plump, juicy, and delicious).

I tell you I’ll be gone maybe thirty minutes, but you ask me to hold up. You want to go shopping with me. First, though, can I bring you the coupons from the mailbox? I do. It takes you thirty minutes to look through the flyers. There’s nothing that you want.

Then you decide you want to send flowers to your friend Kathy, who is also having medical problems. To do that, you need to know if she’s home, so you want to call Tom to learn Kathy’s status. You dial Johnny, your Everquest buddy, by mistake. You ask me if I can do something to make your phone less confusing. I try but it’s not the kind of phone I use, so I can’t understand the settings.

Three hours later — after several such digressions — we pack up and head to the grocery store. There, you’re immediately distracted by the Easter candy. You want malted milk chocolate eggs. We find them. Then it takes more than an hour to work through your short list of groceries. You’re fussy. You want to chat with the workers and customers. When the developmentally disabled fellow offers us help, you tell him you like his accent. He doesn’t have an accent. He has a speech impediment.

Later in the evening, you decide that it’s time to do a water change in the 90-gallon cichlid tank. Before we do the water change, you want to vacuum the gravel. You’re not happy with how I’m doing the job (it’s the first time I’ve ever done it), so you stand to do it yourself.

“You shouldn’t be standing,” I say. “And you should be wearing your oxygen tube.”

“If you’d do this right, I wouldn’t have to stand,” you tell me. I fume inside, but let it pass. This, I remind myself, is why I aborted my return to the family box factory: I couldn’t abide your need for perfection from everyone (except yourself). My anger passes quickly.

You sit back in the wheelchair, then bend over to pick up a book. Immediately, you bolt upright.

“Something’s wrong,” you say. “I can’t breathe. I can’t breathe. I can’t breathe.” I scramble to get the oxygen re-attached. I dash to the kitchen for the morphine. I grab my phone.

“Call Hector,” you tell me. I call hospice instead. “Goddamn it, J.D., call Hector,” you say. I bring your phone to you so that you can call Hector while I speak with the hospice nurse.

Hector tries to calm you through breathing exercises. Hospice has me administer lorazepam and haloperidol. They’ll relieve your anxiety and help you breathe — but not for fifteen minutes. You’re panicking. “Where are you, Hector?” you ask. “Why aren’t you here?”

“I’m home in Vancouver,” he says.

“You guys are useless,” you say. “Where’s Bob?”

“Your brother is at the coast,” I tell you. “He’s a couple of hours a way.” Bob and Audrey have spent the day with friends. They’ve just finished eating fish and chips at the same place you and I visited a couple of weeks ago.

“I’m surrounded by fools,” you say. “I can’t breathe!”

The oximeter says that you can breathe. Your oxygen saturation is fine. Your pulse, on the other hand, is bizarre. It’s 40. Or 220. Or 40. The reading is inconsistent, but it’s always one of those two. I try to take your blood pressure with the automatic cuff. I get nine consecutive errors. Some of these are because you’re agitated and won’t sit still. But why am I getting the others?

At last, I get a reading: 60/44. I write the number on my hand. I call hospice again. “He’s in A-fib. You’ve exhausted all your tools at home,” the nurse tells me. “Call 911.”

I call 911. I’ve never called 911 before. They send an ambulance. I’ve never been involved with an ambulance or paramedics before. They pull off your shirt and attend to you. They ask me questions. They verify your POLST. They load you up and drive you to the hospital. I follow a few minutes behind.

As I drive, I call your brother. He’s in Salem, on his way back from the coast. He’ll meet us at the hospital.

At the hospital, I am surprised to learn that they’re releasing you almost immediately. Bob arrives, and we chat with the doctor in the emergency room. He tells us you had an attack of atrial fibrillation with rapid ventricular response — A-fib with RVR. The paramedics shocked you with cardioversion to “reset” your heart. You can go home now.

We’re surprised but pleased. You spend less than twenty minutes total in the emergency room. I drive you home. You ask to listen to Queen. Siri makes some odd song choices. First, The Show Must Go On: “Does anybody know what we are living for?” Then, You’re My Best Friend: “Oooh, you make me live.” Finally, Who Wants to Live Forever. I wince at the playlist, but you don’t say anything.

It’s 10 April 2022. The hospice nurse is here to follow up after last night’s excitement. You’ve been drugged and out of it for the past twelve hours. You ask me to take you to the toilet.

“J.D.,” you whisper as I help you to the commode. “I’m afraid. I don’t think I’ll make it past today.”

After the nurse has gone you fall back asleep. You sleep for 33 of the 36 hours following your visit to the emergency room. At one point, you wake with a coughing fit. I’m by your side with morphine. You dutifully take it.

“How long?” you ask.

“How long what?” I say.

“How long is there left to live?” you ask.

“I don’t know,” I say, stroking your back. The answer to your question is: fifteen days. You have fifteen days left to live. But truly? When it’s all over, we’ll be able to look back and say that your weekend trip to the E.R. was the true beginning of the end. From here on out, you’re not so much living as you are dying.

It’s 11 April 2022. Hospice nurse Mary arrives. She’s your primary nurse, but I’ve never met her. She’s even more amazing than Tori. Even more amazing than Helen. She can tell that the mood in the house is gloomy. Our morale is dismal. You are defeated. You are waiting around to die.

Mary is having none of it. “I’m not supposed to say this sort of thing,” she confides, “but you are the one in charge. You are the one calling the shots. Who cares what the doctors tell you? If you want to fight, fight.”

“I do want to fight,” you mutter.

“Then we’re here to help you,” your brother says.

Mary’s visit lasts less than an hour, but has a profound effect. The morale in the house has gone from low to high. We have a plan. We’re going to fight.

A visit from hospice

This enthusiasm is short lived. You lapse into delirium. You are frustrated and angry. You sleep most of the time. Bob and I wheel you from room to room at your request, but you have no energy to do anything. You eat little. Lucid conversation becomes rare.

At one point, you and I attempt to watch As Good As It Gets. It’s been your favorite movie for decades. You think Jack Nicholson is hilarious in the film and you frequently quote Melvin Udall’s lines, such as:

Where did they teach you to talk like this? In some Panama City “sailor wanna hump-hump” bar? Or is it getaway day and your last shot at his whiskey? Sell crazy someplace else. We’re all stocked up here.

But you don’t have the energy and attention to watch the movie. You fall asleep after twenty minutes. When you wake an hour later, you’re confused. “What are we watching?” you ask. I don’t try to explain.

It’s 18 April 2022. You have returned from a weekend in “respite care”. You volunteered to stay in a hospice facility for a few nights so that Bob could celebrate Easter with his family and so that I could celebrate my ten-year anniversary with Kim.

Now, though, you are completely disoriented. You don’t know where you are. You don’t know why you’re medicated. You don’t know why you’re confined to bed. You repeatedly try to climb down, but you lack the strength to do so. You are agitated and hostile, accusing me and Bob of playing a joke on you.

It’s 19 April 2022. You remain agitated. You curse us. You demand that we get you out of bed. You demand that we take you to the kitchen, then to the living room, then outside to look at your flowers, then inside because it’s too cold, then outside again because you’ve forgotten we were outside just five minutes ago.

Bob attempts to get some work done, but it’s impossible. For ten hours, you are agitated and irritable. You are delirious. You try to bite Bob. You throw feeble punches at me. You are clearly frustrated, like a caged animal who does not understand its plight.

You have a few brief moments of lucidity throughout the day. In these, you tell us that you love us and appreciate us.

Nick telling Bob he loves him

Mostly, though, you are lost. “What happened?” you ask. “You have cancer,” we say. “I do?” you say. “Will I live?” you ask. Bob and I shake our heads.

Your agitation grows throughout the day. Again you accuse us of playing a cruel joke on you. You call Hector and berate him for pranking you. You call Kathy and do the same. Bob and I are at our wits’ end. We call hospice and they send out Nurse Margaret.

Nurse Margaret gets permission for us to administer phenobarbital, which we do at six in the evening. Within fifteen minutes, you have calmed. Soon you grow groggy. You fall asleep.

It’s 20 April 2022. You wake grumpy. Bob and I are reluctant to administer the phenobarbital because it knocks you out. But when we don’t administer it, you are agitated. He and I discuss things with the hospice nurse and decide that we have to use the phenobarbital. Before we give you the next dose, however, we ask if you want anything to eat. “Eyes uh,” you say.

You want ice cream. I bring you a bowl of chocolate gelato. Bob feeds you three bites before you fall asleep. This is the last thing you will ever eat.

Hector comes to visit. So do your nieces and nephews. Despite the voices and laughter throughout the apartment, you do not stir.

Hector and Bob comfort Nick

In the late afternoon, you wake for a few moments. There’s a crowd around your bedside. You look from face to face. It’s not clear that you recognize us. “Nick, how are you doing?” Hector asks. “It’s me, Hector.”

Hector points to your niece. “Do you know who that is?” he asks.

“Janissa,” you whisper.

Hector points to me. “Do you know who that is?” he asks.

“J.D.,” you whisper.

You make a move as if to hold Janissa’s hand, but when she reaches out you flip your middle finger and grin.

These are the last words you ever say. This is your last conscious action. You fall back asleep. You will never wake again.

For the next several days, Bob and I sit by your bedside. We share childhood memories. He talks to me about his faith. I talk to him about my lack of faith. Bob plays hymns for you on YouTube. I play Taylor Swift. We watch the cichlids in your aquarium. Bob and I administer your care to the best of our abilities. We don’t really know what we’re doing but we love you and we do what we can. The hospice nurses praise us but we’re not sure we deserve their kind words.

Hector drives down to see you nearly every day. He spends hours at your bedside. He cleans and grooms you. He adjusts your position to make you more comfortable. He chatters at you. When Hector is there, Bob and I run errands. We shower. We eat. Other friends and family come to see you and to sit by your side.

When we’re bored, Bob and I begin doing the things we know will need to be done. We begin packing your stuff. We begin gathering account information and passwords. We begin cleaning the house. These actions no longer seem like a betrayal. They seem like acceptance.

I will come into your bedroom to find Bob asleep at your side, his hand in yours. Bob will come into your bedroom to find me asleep at your side, my hand in yours.

I sleep in a recliner next to your bed. Each morning, my back is sore but I don’t care. I want to be close enough to hear changes in your breathing. Some nights, Bob sleeps in an office chair next to your bed.

We await the inevitable.

22 April 2022, 01:09 a.m.

It’s 25 April 2022. Bob wakes me at five minutes before seven: “I think he’s going.”

Your vitals are weak and erratic. I wake your nieces and nephews, who have stayed the night with us. I administer your meds, which are due at seven anyhow. Your vitals stabilize. We breathe a sigh of relief.

The family spends the morning sitting around your bedside chatting, much as we have all week.

Nurse Mary comes at ten for your daily visit. The kids leave the room while she and Bob and I talk about your condition. We adjust your bed. We re-arrange the cushions. We take your vitals. Taylor Swift’s “Red” is playing in the background.

Mary removes your oxygen mask in order to clean your mouth. She and Bob lean in close. I am standing at the foot of your bed. Your oxygen saturation drops from 67 to 37 but your pulse stays steady at 105. The three of us focus on your mouth as Mary explains what she’s doing with the cotton swabs. She wipes with one swab. She wipes with a second. I glance down at the pulse oximeter. There are no numbers there. The pulse line is flat. I look at your chest. You are no longer breathing.

“He has no vitals,” I say.

Bob and Mary step back from your bed. “He’s gone,” says the nurse. And you are. You are gone. It is 10:15 on a Monday morning, and — just like that — you have left this world.

 

You were my cousin. You were five years older than me. You and I shared similar temperaments, similar interests, similar philosophies. We read similar books. We played the same games. We confided our deepest secrets with each other. We encouraged each other. We called each other out on our bullshit. You taught me much about life. I did my best to teach you. You were my cousin. You were my friend. Get Rich Slowly would not exist without you.

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There are 92 comments to "As good as it gets".

  1. christine says 26 April 2022 at 13:22

    I’m so sorry for your loss! I have greatly appreciated the little snippets you’ve shared throughout the years and I am honored to have a chance to read this. Thank you for sharing.

  2. Dave @ Accidental FIRE says 26 April 2022 at 13:29

    My condolences JD, what an amazing tribute this is and it’s obvious how much he meant to to you. Best to you and your family

  3. Betsy says 26 April 2022 at 13:38

    Deepest condolences. Achingly beautiful account.

  4. Tina in NJ says 26 April 2022 at 14:06

    JD, my deepest condolences to you and your family. A beautiful tribute to a man you clearly loved.

  5. Kim says 26 April 2022 at 14:28

    As useless as this sounds, my thoughts are with you. It’s wonderful that you were able to relive your time together and hopefully it helps to celebrate the better moments.

  6. Eban says 26 April 2022 at 14:57

    Thank you JD, that was a beautiful tribute to a life. I’ve been reading your blog for 10+ years and have never commented, but I’m in tears and just wanted you to know that you did an amazing thing for another human being and I hope that if I’m ever in a similar situation that I can be half as giving as you were for your cousin. Bless you.

    • Matty Rex says 04 June 2022 at 22:29

      Same.

  7. Bob Bonham says 26 April 2022 at 15:05

    I am so sorry for your loss of such a dear friend and cousin. What an amazing tribute. Thank you for sharing. I cried, I smiled, and I think I glimpsed a small portion your love for each other.

  8. Diego says 26 April 2022 at 16:12

    My condolences. What a rough testimonial, mande me think a lot about friendships and family. I’m sure He read this up above and gave a smile back at you.

  9. Deborah Hollister says 26 April 2022 at 16:12

    This is such a real and beautiful tribute to your cousin. I’m so sorry you have lost him. (Longtime reader)

  10. Michaela says 26 April 2022 at 16:58

    What a lovely, painful tribute to your cousin. Thank you for sharing with us; it’s an honor to learn more about your relationship, his life and ultimately his death. And I know it’s not the point, but this is beautifully written. Sending best wishes to you and yours from a longtime reader; not sure if I’ve commented before.

  11. Frogdancer Jones says 26 April 2022 at 17:01

    A heartfelt eulogy, (because that’s pretty much what this is), for your cousin.
    He and I were born in the same year, it seems.
    You two were fortunate to have such a close friendship. xxx

  12. Mrs Random says 26 April 2022 at 17:05

    I’m so sorry.

  13. Rebekah says 26 April 2022 at 17:23

    If only we could all be so very loved and so well cared for … this is beautiful, thank you for bearing witness and sharing this

  14. Nate says 26 April 2022 at 18:54

    Heart breaking to read, but so lovely this life you are sharing. Rest In Peace.

  15. Jennifer B says 26 April 2022 at 19:11

    I am so sorry for your loss. You have beautifully captured this journey that you’ve been on in the last few months, my husband and I had a similar experience with my MIL this time last year and reading your story put me right back there. There is no easy way to support someone through the end of their life, but you have certainly made a valiant effort. Well done.

  16. Chris says 26 April 2022 at 19:13

    JD, this was a beautiful testimony to your cousin. I read every word. I am very sorry for your loss and will pray for you and your family. I am glad you were able to care for him in his time of need. It was your time of need, too.

  17. Nikki says 26 April 2022 at 20:50

    Hi J.D.
    I’m Nikki, I was one of his Everquest group. We called him Kotys, he called me Lani. Lilbraen, Veny (Johnny), Atro, Zizzle, Gray and I had such good times with him. In fact, he started the Sunday group, and I owe some of the most important friendships I have to him because of it. Although we never met in the real world, we talked on Teamspeak every week, and he was the heart of our group. Kotys was such a kind and gentle person. We have all been dreading this news for some time. But we have treasured all the time we got with him, especially since his diagnosis. We got far longer than we expected, and yet, so much less than we wanted.
    Thank you for your beautiful blog post. I learned things I never knew about him. I’m so glad you were with him until the end. It is such a comfort to know he wasn’t alone, and that he was surrounded by love.
    I am so sorry for your loss, may his memory be a blessing for you. I know that it will be for us.
    Kotys, we will love you forever. xx

    • J.D. says 26 April 2022 at 21:11

      Nikki! I am glad you commented and used an email address. I will contact you. I’d like to log in at some point to distribute his gear to you, if that’s of interest.

      Just FYI, you all meant the world to Kotys. He loved his Happy Travelers. There are two Everquest specific events not included above.

      First, as we were driving to the tulip fields, Johnny called Nick. (Or maybe he texted Nick, who then called Johnny?) Nick was grateful for that conversation.

      Second, on the Sunday after the final ER visit (the one where they released him quickly), Nick was desperately trying to log in to the NCG forum in order to post a message: “Kotys has left the game.” At this point, though, he was too confused and uncoordinated to make the post, so he asked me to do it. It’s on my to-do list.

      Funny postscript to that anecdote: As Nick was trying to make that post, he was seated in his wheelchair. Bob was to his left. I was to his right. Nick was cold (he was often cold during the final weeks), so in addition to wearing warm clothes, he had a blanket draped over his back. “Are you trying to post a farewell message?” I asked after he grew impatient. “Let me do it for you.” Nick wheeled back and then — as if in slow motion — Bob and I watched the wheelchair topple over backward. Nick’s blanket had become trapped in the wheel. Fortunately, he wasn’t hurt. One of the wheelchair handles broke the fall, snapping in two. It was after this I promised him I’d make his post for him.

      • Nikki says 26 April 2022 at 22:09

        I would love to hear from you. Please reach out when you are able, and it is convenient for you, we don’t want to be a burden.
        We have posted to the NCG boards to let everyone know that Kotys has “left the game”. But please don’t let that stop you from posting a message on his behalf. I’m sure he’d like that very much.

    • reddot says 26 April 2022 at 21:33

      JD, I am very glad for Nick that he has you in his family who truly understood his gaming life and is able to make contact with Nikki. Others have taken much longer to understand and appreciate.

      With all my condolences for your loss and bravo for all the caregiving that you have made for him.

      https://www.bbc.com/news/disability-47064773

  18. S says 26 April 2022 at 21:04

    My condolences. You were a true friend and caretaker for your cousin. Thank you for sharing your story.

  19. Frances says 26 April 2022 at 21:37

    What a moving tribute to your cousin. The day of lucidity really hit home, as my late husband had a morning of lucidity on his last day, had a good conversation with our son, then went to “sleep” for the rest of they day, night, and finally, eternity.

  20. Jason says 26 April 2022 at 21:44

    Beautiful entry J.D. I’m terribly sorry for your loss.

  21. JA says 26 April 2022 at 22:27

    Thank you for sharing. I am sorry for the loss of your cousin. I don’t know that are any words for the passing of someone so close. I actually think that all the words that could be spoken were done above. Thank you for writing.

  22. Nadine says 26 April 2022 at 22:37

    I’m so sorry J.D. My sincere condolences to you and your family. You wrote a beautiful tribute about your time with your cousin. May your cherished memories with him sustain you through this time. It brought me to tears to read – I had to step away to read the last part in private. I remember reading through the years about your experiences with your cousin and when you took a trip to the Christmas markets together. Parts of your experience nearing the end with your cousin reminded me of saying goodbye to my dad in early May 2006 after doctors determined nothing more could be done for him a month after his car accident. Peace and strength to you and your family. Remember to take care of yourself.

  23. Hannah says 26 April 2022 at 23:52

    I’m so sorry, J.D.

  24. Jo says 27 April 2022 at 03:41

    JD, this is a beautiful tribute and made me cry in recognition of so much. Thank you for sharing this difficult time.

  25. Erin says 27 April 2022 at 04:53

    My condolences to you & your family. Thank you for sharing your journey with us with such transparency & authenticity for all these years. You & GRS are a breath of fresh air. I wish you peace as you process this huge transition.

  26. Michael (once upon a time Money Beagle) says 27 April 2022 at 05:20

    What an amazing tribute to a person who had an amazing impact on your life. Thanks for sharing that with all of us.

  27. Chris says 27 April 2022 at 05:32

    So so sorry for your loss. Thanks for sharing such a wonderful tribute to Duane/Nick.

  28. Karen says 27 April 2022 at 05:55

    Hugs, JD. So sorry to hear that Duane is gone. I feel like we knew him a little through your writing. I wish I’d thought to do something like this when I was caregiving for my mom.

  29. Jackie says 27 April 2022 at 07:09

    Thank you for this. I’m sure you had as big of an impact on his life as he had on yours. And I’m sorry for your loss.

  30. Anne says 27 April 2022 at 08:18

    Tears are running down my face.

  31. Eileen says 27 April 2022 at 08:41

    JD — what a tribute. So very sorry for your loss.

  32. Heather says 27 April 2022 at 08:45

    Sincere condolences, JD. Peace and comfort to you and your family . Thank you for sharing.

  33. Emily says 27 April 2022 at 09:03

    Thank you for sharing this, it’s beautifully written. May his memory be blessing to you and those who loved him.

  34. David C says 27 April 2022 at 09:11

    JD, I am so sorry for your loss. This was heartbreaking to read and I am glad that you gave us this amazing tribute to a dear friend and cousin. My thoughts are with you and all whom his life touched.

  35. Jordana says 27 April 2022 at 09:43

    In Judaism when we learn of a death, we often say, “may his memory be a blessing.” Thank you for sharing these memories with all of us.

  36. Taeha says 27 April 2022 at 11:07

    Sorry for your loss and thanks for sharing.

  37. Kristen says 27 April 2022 at 12:50

    This is heartbreakingly beautiful. I am sorry beyond words. Please take care of yourself.

  38. Melissa Cafiero says 27 April 2022 at 14:08

    I’m so sorry for your loss. Thank you for sharing this wonderful tribute! Duane/Nick was lucky to have you in his life, supporting him through the end and honoring him in such a touching way now that he’s gone.

  39. Hans says 27 April 2022 at 15:54

    JD, this is a wonderful tribute to your history and your service to Nick. It’s a truthful and honest journal of the devotion you have to your cousin. I am sorry for your loss and will keep you in my prayers.

  40. Shannon says 27 April 2022 at 15:56

    So sorry for your loss – beautiful tribute. Thank you for sharing.

  41. Charlotte says 27 April 2022 at 16:46

    I’m so sorry for your loss. This is such a beautiful tribute to his life and your friendship.

  42. Rachael says 27 April 2022 at 18:37

    Just another of the many posting my condolences (weak comfort though they may be) and that your writing absolutely slayed me. ?

  43. raven_smiles says 28 April 2022 at 05:22

    What a beautiful tribute to your cousin. It is so hard to lose someone. Thanks for giving us a peek into your life with him. May his memory be eternal.

  44. Adam says 28 April 2022 at 06:26

    This is the best writing I’ve ever seen on this site or on this topic. Thank you for capturing how messy and amazing life can be. I hope that the time you spent, the memories that came back, and the act of sharing it with us all provide comfort. Here’s to your flawed and magnificent cousin…!

  45. J$ says 28 April 2022 at 06:27

    golly man, what an epic piece of story telling… sending love and good vibes over.

  46. amy says 28 April 2022 at 06:35

    My deepest condolences. I am sure you were both thankful for the opportunity that you had in the end to spend the time that you did.

  47. monica says 28 April 2022 at 07:40

    Thank you. This post was a beautifully written account of the end of a life. I went through something similar with my best friend. Difficult, but sadly a part of being human.

  48. Rebecca says 28 April 2022 at 08:47

    What an incredible piece and tribute to your cousin and friend. Thank you so much for sharing it with the world.

  49. Charlotte says 28 April 2022 at 10:19

    What a beautiful tribute, how lucky you were to have one another. This is the best that life has to offer, and I am glad that you were able to both give and receive it, though it makes the loss all the greater

  50. email says 28 April 2022 at 15:11

    Wow, JD. You are one heck of a writer and story teller of life’s large and small moments. You did one of the biggest acts of service and love one can do by being there for his final months and moments. I hope I have someone like you in my life at the end. I’m sorry for your immense loss. Hopefully we’ll hear more about Nick as you somehow process his coins and cards (I was cringing a bit thinking of all the work you previously did to manage your own collections of stuff). I hope his fish got kind, responsible, long-term homes.

  51. Maryalene says 28 April 2022 at 17:44

    Esophageal cancer took my husband too. I’m so sorry JD.

  52. Alicia Cameron says 28 April 2022 at 18:57

    So sorry for your loss JD. You have such an eloquent way with words i have tears coming down my face. Beautiful tribute to your wonderful cousin and all the memories. The pictures just touched my heart.

  53. Mack says 29 April 2022 at 09:24

    Thank you for sharing this, it’s a beautiful meditation on the end of life. My grandfather passed away just about a month before your cousin and it sounds like you had a similar experience caring for him. I’m so sorry for your loss

  54. Meg says 29 April 2022 at 13:33

    I’m so sorry for your loss. Thank you for sharing about your cousin and writing up this history. Thank you always for your authenticity. I’m sending a hug your way.

  55. Jennifer says 29 April 2022 at 16:58

    J.D., I can think of no greater way to leave this earth than to know how loved one is – no doubt your cousin knew he was loved. You, Bob and all of Nick/Duane’s family did an outstanding job of caring for him in his final days, and the way in which you shared his story is so moving.
    If the last food I eat is chocolate gelato, and I’m surrounded by loved ones in my final days, I’ll leave earth with a smile on my face. That just sounds like heaven.
    Condolences. Get some rest and take care of you while you work to recover & grieve.

  56. Ringo says 30 April 2022 at 06:39

    Condolences and sincere wishes for your comfort.

  57. Fred says 30 April 2022 at 08:18

    Perhaps the ultimate privilege of being FIREd, is the ability be there nearly 24/7 for someone special to you.

  58. Marla says 30 April 2022 at 14:12

    What an achingly beautiful account J.D. Your time together captures Grace.

  59. Marta says 01 May 2022 at 02:44

    Thanks a lot for sharing this. I found your post by chance (HA) and read it all in one go. Besides being a real brave and strong friend to your cousin I think you also are a fine storyteller, in the best possible sense of that term. All the best for you, hope you now find the time and space to recover your own energy and peace of hart, mind and soul. Best from Netherlands.

  60. Caro says 01 May 2022 at 12:34

    Helping a loved one to die is the most difficult thing to do. And the greatest of gifts. Love, hatred, frustration guilt despair – and finally relief. To be closer than you have ever been – then farther, for always. I am so sorry for your pain, and so glad that you found someone worthy of experiencing that pain for. Now I have to go dry my tears and put my own memories back in their box.

  61. Laura Lee says 01 May 2022 at 16:46

    May his memory be a blessing and a comfort.

  62. Karen L says 03 May 2022 at 11:18

    That was a beautiful tribute to your cousin and the great love you shared. Kudos to you for making him your top priority at the end of his life.

  63. Girt says 05 May 2022 at 00:59

    Rest in peace Nick. And thank you for sharing your wonderful friendship with us.

  64. Jen M. says 05 May 2022 at 09:11

    I’m so sorry for your loss. Thank you for sharing your cousin and your love for each other with us. May his memory be a blessing.

  65. AnnieL says 05 May 2022 at 18:42

    I read the whole thing JD, in honor of him. You witnessed him to the end and that’s a real gift.

  66. Liz says 06 May 2022 at 10:32

    Wow, you have a huge talent for writing such a moving story…amazing! So, so sorry for your loss, and I send my deepest condolences. Please take good care of yourself after this devastating event, and stay close to Kim:)

  67. Greg says 06 May 2022 at 12:04

    JD, been a rough few weeks, sorry to hear. Very excited for the new format. Looking forward to hearing about your fitness journey and very curious about the software with the box factory. I work in IT, if I can help, let me know!

  68. Donna Wolff says 09 May 2022 at 18:43

    JD, I wonder if you might consider grief therapy? I was the caregiver for my husband for 26 years and I just started grief therapy a few months ago after he passed away. Now I can see that it might have been very helpful to start many years ago. Your thoughts at starting hospice for your mom and wondering if you should bring her home are excellent things to have a therapist work through with you.

  69. Chris says 13 May 2022 at 14:12

    JD, First, I am so sorry for the loss of your cousin, Duane. Though my Mom’s last months and my caretaking duties paralleled yours, I still don’t know what to say, beyond I am sorry.
    But I do want you to know that I will be one of the people dropping in to read your musings – and have been dropping in off and on since the beginning. Even when you were sharing the basics of personal finance, your writing has that perfect mix of your personal story and voice but something that we can all relate to. Your cousin’s personality and last months were so very different than my Mom’s and yet I recognized so much of what I felt and experienced in the reading of your story – the denial, the search for ways to help ease the agitation and pain, the drives to see things of interest beyond his home, the caring for someone that you know you will soon lose, someone imperfect but precious. Thank you for sharing your experiences and emotions.
    I remember the days of early blogs when people seemed to share wonderful personal essays rather than turn themselves into brands. Yours was always one of my favorites. Looking forward to seeing where you take this.

  70. Sandi Kay says 14 May 2022 at 12:13

    My deepest condolences, J.D. You gave Nick an unbelievable gift, and your love for him shines through here.
    My best friend passed from cancer in 2010, and many of your entries bring back that time with such clarity; I’m sitting here with tears in my eyes, because it’s just so. damn. hard.
    Be kind to yourself, and know that anything that follows now needs to be on your terms. Nick’s needs and desires are gone now; you took care of them while he was with you. It’s OK to let the fish go, or donate the food, or gift the coins.
    Well done, sir.

  71. JHP2 says 15 May 2022 at 17:23

    Condolences and thank you. This was very powerful.

  72. Joe says 16 May 2022 at 10:11

    Sorry for your loss. It’s tough getting old. I hope your mom will get better care at the hospice. My mom recently lost her ability to walk too. She is going into a nursing home very soon. Take care of yourself too. That’s a lot to go through.

  73. Revanche @ A Gai Shan Life says 17 May 2022 at 22:00

    My condolences on Duane’s passing, and your mom’s deterioration. I’m so glad that you have the means to provide the professional care she needs.

    I’d love it if you went back to the earliest days of blogging style of blogging. I never moved out of it myself and would welcome the company. 😉

  74. Mr RIP says 19 May 2022 at 02:34

    Thank you J.D. for having shared your story with all of us. I can only try to imagine what you’ve been through.

  75. Jennifer says 19 May 2022 at 05:38

    I am sorry for your loss. I am glad that you were able to be there with Nicky and Bob and Hector and the rest of your family at this time.
    Thank you for sharing the intimacy of this time with us. It was fascinating learning so much backstory from the bits and pieces you’ve shared about your relationship with Nicky and how he was integral in your life.
    I hope you take care of yourself. As exhausting as caretaking is, the vacuum of having that constant undercurrent of worry and responsibility absent is a huge adjustment. I have found that a lot of feelings come up in the new space that require a lot of time and energy.

  76. Graham says 26 May 2022 at 23:42

    Thank you for writing and sharing this. It’s a tremendous eulogy. I’m in tears.Listening to Just Breathe and Soon You’ll Get Better after having read your beautiful piece… that just wrecked me. Thank you again for sharing this important part of your life.

  77. Gwen Hertzler says 03 June 2022 at 10:43

    Thank you, JD, for doing this for Nick, for you, for the rest of us.

    I sat outside Sprouts in my car and read every word.

    Love and respect to you and Bob.

  78. TDC says 03 June 2022 at 11:12

    Damn. That was sad.

  79. Debra says 03 June 2022 at 14:01

    J.D., I’m sorry for your loss. This post was so beautiful. Thank your sharing such a personal experience. It really touched me. I too have loss family members to cancer but I was not around. I heard about the similarities in behavior. Your transparency is healing for me.

  80. Stephen Johnston says 03 June 2022 at 14:32

    What an touching tribute to your cousin and friend.
    I hope someone is there to care for me like that should I need it. I also hope I’m able to deliver the same kind of care for a loved one should they ever need it.

  81. Jennifer says 03 June 2022 at 16:07

    I’m so sorry for your loss, J.D. Thank you for sharing.

  82. Margie says 03 June 2022 at 16:54

    I’m speechless and in Heartbreaking but Stunning Awe – Bless You.

  83. Holly says 03 June 2022 at 17:41

    A very moving piece and I can’t believe the amazing similarities of your experience to ours when a very close relative passed from cancer. Wishing you peace, knowing you gave the gift of spending that precious time with your cousin.

  84. Christy says 04 June 2022 at 15:29

    JD thank you for sharing this. It was really difficult to read, but also good. I felt like I was re-reading my own experience with my dad. Spooky similarities. The fish and chips and deep gratitude, sleeping in a recliner, the agitation and incoherent rambling, feeling like I had no idea what I was doing, the chocolate gelato at the end. Thank you for taking care of your cousin.

  85. vida says 04 June 2022 at 18:20

    Oh dear JD I’m so very sorry for your loss, and I loved every word from your story. Thank you so much for sharing such an intimate and personal story about your cousin’s life, and eventual passing. I could feel your love for your dear cousin / best friend throughout your story, and I cried with you. <3

  86. Ann A says 05 June 2022 at 14:26

    I am so sorry for your loss. Thank you for sharing this.

  87. Marivic Pontejon Frederick says 05 June 2022 at 21:14

    Thank you for sharing. I am so sorry for your loss.

  88. Olivia says 14 June 2022 at 05:04

    This is beautiful! Thank you for writing it. I’m sorry for your loss.

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